My sister, Lee Ann, recently passed away from ALS. She was diagnosed in the beginning of October 2023 and passed away in March 2024. Her battle with this horrible disease was short. Others struggle for years. My family and friends, her family and friends will be walking in her memory.  She thought of Eeyore as her spirit animal. We will be in pink shirts (her favorite color) and will be wearing Team Eeyore proudly.  

 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

 

That's why I'm walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: "You have ALS" again. 

 

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. 

 

But we can't stop now. The key to a cure begins with you. 

 

Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.